The End Unexplained Cardiac Death (EndUCD) Registry for Young Australian Sudden Cardiac Arrest.
Full text not available from this repository.Item Type: | Article |
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Status: | Published |
Official URL: | https://doi.org/10.1016/j.hlc.2020.09.937 |
Journal or Publication Title: | Heart, Lung and Circulation |
Volume: | 30 |
Number: | 5 |
Page Range: | pp. 714-720 |
Date: | 2021 |
Divisions: | Cardio Genomics Molecular Cardiology |
Depositing User: | General Admin |
Identification Number: | 10.1016/j.hlc.2020.09.937 |
ISSN: | 14439506 |
Date Deposited: | 10 Jun 2021 05:40 |
Abstract: | In 2019, the first multi-source registry of sudden cardiac arrest and death for patients aged 1-50 years launched in Victoria, Australia. Sudden cardiac arrest (SCA) affects approximately fifteen hundred younger Victorians per year. The End Unexplained Cardiac Death (EndUCD) Registry enrols SCA/death (D) cases aged 1-50 years, providing family screening, access to psychological support through clinical sites and creating a genetic biorepository for whole-genome sequencing. The registry will support clear pathways of cardiac assessment, epidemiological profiling and routine family screening and psychological support. Keywords: Cardiac arrest; Cardiomyopathy; Clinical registry; Sudden cardiac death. Copyright © 2020 Australian and New Zealand Society of Cardiac and Thoracic Surgeons (ANZSCTS) and the Cardiac Society of Australia and New Zealand (CSANZ). All rights reserved. |
Creators: | Creators Email Paratz, Elizabeth D. UNSPECIFIED Rowsell, Luke UNSPECIFIED van Heusden, Alexander UNSPECIFIED Zentner, Dominica UNSPECIFIED Parsons, Sarah UNSPECIFIED Morgan, Natalie UNSPECIFIED Thompson, Tina UNSPECIFIED James, Paul UNSPECIFIED Pflaumer, Andreas UNSPECIFIED Semsarian, Christopher UNSPECIFIED Ingles, Jodie UNSPECIFIED Case, Rosalind UNSPECIFIED Ball, Jocasta UNSPECIFIED Smith, Karen UNSPECIFIED Stub, Dion UNSPECIFIED La Gerche, Andre UNSPECIFIED |
Last Modified: | 10 Jun 2021 05:40 |
URI: | https://eprints.centenary.org.au/id/eprint/979 |
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