The End Unexplained Cardiac Death (EndUCD) Registry for Young Australian Sudden Cardiac Arrest

The End Unexplained Cardiac Death (EndUCD) Registry for Young Australian Sudden Cardiac Arrest.

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Item Type: Article
Status: Published
Official URL: https://doi.org/10.1016/j.hlc.2020.09.937
Journal or Publication Title: Heart, Lung and Circulation
Volume: 30
Number: 5
Page Range: pp. 714-720
Date: 2021
Divisions: Cardio Genomics
Molecular Cardiology
Depositing User: General Admin
Identification Number: 10.1016/j.hlc.2020.09.937
ISSN: 14439506
Date Deposited: 10 Jun 2021 05:40
Abstract:

In 2019, the first multi-source registry of sudden cardiac arrest and death for patients aged 1-50 years launched in Victoria, Australia. Sudden cardiac arrest (SCA) affects approximately fifteen hundred younger Victorians per year. The End Unexplained Cardiac Death (EndUCD) Registry enrols SCA/death (D) cases aged 1-50 years, providing family screening, access to psychological support through clinical sites and creating a genetic biorepository for whole-genome sequencing. The registry will support clear pathways of cardiac assessment, epidemiological profiling and routine family screening and psychological support.

Keywords: Cardiac arrest; Cardiomyopathy; Clinical registry; Sudden cardiac death.

Copyright © 2020 Australian and New Zealand Society of Cardiac and Thoracic Surgeons (ANZSCTS) and the Cardiac Society of Australia and New Zealand (CSANZ). All rights reserved.

Creators:
Creators
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Paratz, Elizabeth D.
UNSPECIFIED
Rowsell, Luke
UNSPECIFIED
van Heusden, Alexander
UNSPECIFIED
Zentner, Dominica
UNSPECIFIED
Parsons, Sarah
UNSPECIFIED
Morgan, Natalie
UNSPECIFIED
Thompson, Tina
UNSPECIFIED
James, Paul
UNSPECIFIED
Pflaumer, Andreas
UNSPECIFIED
Semsarian, Christopher
UNSPECIFIED
Ingles, Jodie
UNSPECIFIED
Case, Rosalind
UNSPECIFIED
Ball, Jocasta
UNSPECIFIED
Smith, Karen
UNSPECIFIED
Stub, Dion
UNSPECIFIED
La Gerche, Andre
UNSPECIFIED
Last Modified: 10 Jun 2021 05:40
URI: https://eprints.centenary.org.au/id/eprint/979

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