How Patient Perceptions Shape Responses and Outcomes in Inherited Cardiac Conditions

How Patient Perceptions Shape Responses and Outcomes in Inherited Cardiac Conditions.

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Item Type: Review
Status: Published
Official URL:
Journal or Publication Title: Heart, Lung and Circulation
Volume: 29
Number: 4
Page Range: pp. 641-652
Date: 2020
Divisions: Cardio Genomics
Depositing User: General Admin
Identification Number: 10.1016/j.hlc.2019.11.003
ISSN: 14439506
Date Deposited: 22 Dec 2020 03:46

At least one-third of adults living with an inherited cardiac condition report clinically-significant levels of psychological distress. Poorer health-related quality of life compared with population norms is also consistently reported. These outcomes are associated with younger patient age, having an implantable cardioverter defibrillator, and receipt of uncertain clinical test results, and can influence self-management behaviours, such as adherence to potentially critical life-preserving medications. According to the Common Sense Model of Illness, people use information from multiple sources to ‘make sense’ of their health condition, and how they conceptualise the condition can strongly influence adaptation and coping responses. Previous studies with people with inherited cardiac conditions show that illness perceptions, such as greater perceived consequences and a poorer understanding of the condition, are associated with greater psychological distress and poorer adherence to medication. The Common Sense Model provides one potential framework for identifying patients who may be more vulnerable to adverse health outcomes, and for developing early interventions to reduce the physical and psychosocial burden of these conditions. Interventions based on the Common Sense Model have successfully improved physical and psychosocial outcomes associated with other cardiac conditions, and could be tailored for use with patients with an inherited cardiac condition (ICC).

O’Donovan, Claire
Ingles, Jodie
Broadbent, Elizabeth
Skinner, Jonathan R.
Kasparian, Nadine A.
Last Modified: 05 Jan 2021 21:48

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