Participation in thrill-seeking activities by patients with hypertrophic cardiomyopathy: Individual preferences, adverse events and physician attitude

Participation in thrill-seeking activities by patients with hypertrophic cardiomyopathy: Individual preferences, adverse events and physician attitude.

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Item Type: Article
Status: Published
Official URL: https://doi.org/10.1016/j.ahj.2019.04.001
Journal or Publication Title: American Heart Journal
Volume: 214
Page Range: pp. 28-35
Date: 2019
Divisions: Cardio Genomics
Molecular Cardiology
Depositing User: General Admin
Identification Number: 10.1016/j.ahj.2019.04.001
ISSN: 00028703
Date Deposited: 21 Dec 2020 23:04
Abstract:

Background: Thrill-seeking activities are a favorite pastime for people of all ages. Patients with hypertrophic cardiomyopathy (HCM) are often barred from participation on the basis of danger for arrhythmias. Our aim was to collect information regarding the safety of thrill-seeking activities for HCM patients.

Methods: An anonymous online survey invited adult HCM patients to report participation in 11 activities (rollercoaster riding, jet skiing, rafting, bungee jumping, rappelling, paragliding, kayaking/canoeing, motor racing, snowboarding, BASE jumping and skydiving) before and after HCM diagnosis, along with major (ICD shock, syncope) or minor (nausea, dizziness, palpitations, chest pain) adverse events related to participation, and relevant physician advice.

Results: Six hundred forty-seven HCM patients completed the survey, with 571 (88.2%) reporting participation in ≥1 TSAs (participant age 50.85 ± 14.21, 56.6% female, 8143 post-diagnosis participations). At time of survey, 457 participants (70.6%) were ICD-carriers or had ≥1 risk factor for sudden cardiac death. Nine (1.5%) participants reported a major event during or immediately after (60 minutes) of surveyed activity. Minor adverse events were reported by 181 participants (31.6%). In addition, 8 participants reported a major adverse event >60 minutes later but within the same day. Regarding physician advice, of the 213 responders (32.9%) receiving specific advice, 56 (26.2%) were told safety data is absent with no definitive recommendation, while 24 (11.2%) and 93 (43.6%) were told TSAs were respectively safe or dangerous.

Conclusions: In this cohort, participation in thrill-seeking activities rarely caused major adverse events. This information can be used for shared-decision making between providers and patients.

Copyright © 2019 Elsevier Inc. All rights reserved.

Creators:
Creators
Email
Papoutsidakis, Nikolaos
UNSPECIFIED
Heitner, Stephen
UNSPECIFIED
Ingles, Jodie
UNSPECIFIED
Semsarian, Christopher
UNSPECIFIED
Mannello, Meghan
UNSPECIFIED
Salberg, Lisa
UNSPECIFIED
Waldman, Cynthia
UNSPECIFIED
Vaccaro, Benjamin
UNSPECIFIED
Maurizi, Niccolo
UNSPECIFIED
Olivotto, Iacopo
UNSPECIFIED
Jacoby, Daniel
UNSPECIFIED
Last Modified: 21 Dec 2020 23:04
URI: https://eprints.centenary.org.au/id/eprint/179

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